Warriors and Survivors - 128

Children Cancer Stories by Rukh Yusuf - Blog # 128

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 

Shortly after his third birthday, Zain’s parents began to notice significant swelling on the right side of Zain’s head. Their worries began growing after they realized that Zain was more tired than usual, presenting signs of difficulty in breathing, and struggling to complete everyday activities.

To their worry, at that point, Zain’s parents decided to take Zain to the local physician as the poor family belonged to a small town Daska. The physician referred Zain to tertiary care hospital as Zain needed thorough investigations. His parents took him to Children’s hospital where several blood tests and scans would soon determine their family's journey for the next several years. Anxiously awaiting the blood test results, the parents received a call from laboratory advising them to take Zain to the emergency department at Children’s Hospital immediately. At that point, they began to realize this was something serious.

Zain’s parents will never forget the last week of school, when they picked him up and took him to the emergency department at s Children’s Hospital for further testing, where more blood work, an x-ray and other imaging were performed. That day, parents received the news that no parent should ever have to hear – “your child has leukemia.”

Zain was diagnosed with Pre B acute lymphocytic leukemia. He was immediately admitted and placed under the care of pediatric hematologist-oncologist at Children’s Cancer and Blood Disorder department, where he began his treatment plan.

Now more than three months since his diagnosis and start of treatment, Zain is doing well so far. Zain and his parents have a long way to go. It is really a long and arduous journey for a poor family like Zain’s. 

As for Zain, unaware of what is happening to him, he is enjoying life like every kid should. He recently became a big brother, welcoming his little sister to the world. Zain and his family also accepted the new life while full of everyday challenges. Prayers that they may be able to handle these challenges to Zain’s recovery. 

Prayers for Zain’s smooth treatment and early recovery. Many prayers for his parents who are going through a very difficult time.  

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.

Warriors and Survivors -127

Children Cancer Stories by Rukh Yusuf - Blog # 127

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 

Jawad was only six years old when he was diagnosed with acute lymphoblastic leukemia. Jawad loves Rubik’s cube and he can solve a Rubik’s cube without a problem. He loves cricket and spending time with his siblings.

In January 2023, Jawad was fighting what seemed like a bad cold. After weeks of fever and medical tests, his family’s concern was growing – after all, he had always been such a healthy kid. Next couple of weeks, the family was busy in hospital visits for Jawad’s tests and treatment.  Later he was referred to children hospital as his symptoms were persistent. At Children hospital, Jawad had to go for most of blood tests to confirm the cause of his persistent symptoms. Because most his tests came back normal, it wasn’t until February that Jawad received an official diagnosis: acute lymphoblastic leukemia.

The next three months revolved around Jawad’s treatment. His treatment regimen was straightforward, and he was fortunate enough not to have any prolonged hospital stays, adverse reactions or secondary conditions. He Is under treatment now; his chemotherapy Induction phase is going on. By the grace of Allah, Jawad is tolerating well his treatment plan so far and he has no need to stay longer at the hospital.

Thankfully, Jawad’s mom and dad are managing the treatment and travelling all the way from outstation. But it is a long treatment and who knows will they be able to continue the treatment with same spirit?

 “We didn’t know how we would cover all the costs, but when you are making these decisions – the life and death of your child – finances fall very low on the list,” his mother says. Fortunately, we have some social worker and philanthropist who help patients and their families financially as well.

With the help of these social worker and philanthropists, many families are managing the travel and living expenses for the treatment of their children. . We are so thankful for them for their help that allows many families the possibility of pursuing a treatment option for their beloved children. Having to make care choices for your child under the worry of financial pressure is something that no family should have to do.”

Prayers for Jawad’s smooth treatment and early recovery. Many prayers for his parents who are going through a very difficult time.  

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.

Warriors and Survivors - 126

Children Cancer Stories by Rukh Yusuf - Blog # 126

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 

Abu Bakar was 4 years old when he was diagnosed with acute lymphoblastic leukemia. His mother shares his story.

“Abu Bakar was 4 years old and he had been healthy and happy child until when he first started having constant chest infections, sore limbs, weight loss and feeling generally lethargic. After a couple of courses of antibiotics, the doctor told it was suspected sepsis. We took him to ER and his bloodwork was done; we were advised the diagnosis of Acute Lymphoblastic Leukemia. This was heartbreaking day and our lives changed drastically since the day.

His treatment was started in Children’s hospital and first course was induction. After induction he was moved to treatment regimen C which was more intense chemotherapy than predicted. I felt sick as other parents told me their child was on treatment regimen A. 

Abu Bakar had 2 seizures which was so scary. After his first seizure he was admitted to the ICU due to the methotrexate in the lumbar puncture procedure. He got settled in few days and his chemotherapy started again. 

Abu Bakar is now in maintenance cycle 4 and he  will finish his treatment in  December 2024 - we cannot wait for this day!

Things have changed so much for us as a family. Abu Bakar is so used to the hospital, which is sad. I don't think he remembers much of his life before all his treatment.

Sometimes he goes to school when he is well enough but it's hard for him as he misses so much time. His elder sisters have coped incredibly and played a positive role in managing this crucial time. 

For me having a cancer child is a life changing situation that nobody should ever be in.

All my relatives and everyone asks how we do it. I think if Abu Bakar can do it, then so can we!”

Prayers for Abu Bakar’s smooth treatment and early recovery. Many prayers for his parents who are going through a very difficult time.  

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.

Warriors and Survivors -125

 Children Cancer Stories by Rukh Yusuf - Blog # 125

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 

September is recognized as Childhood Cancer Awareness Month (CCAM) every year by childhood cancer organizations around the world.

With a goal to increase awareness and raise funds for those affected by childhood cancer, the American Childhood Cancer Organization encourages everyone to Go Gold® during September in honor and in memory of kids with cancer!

Each year in the U.S., an estimated 15780, children aged 0-19 are diagnosed with cancer. Approximately 1 in 285 children in the U.S. will be diagnosed with cancer before their 20th birthday. Globally more than 300,000 children are diagnosed with cancer each year. Every 3 minutes, a family hears the devastating words that their child has been diagnosed with cancer. 

Cancer remains the number #1 cause of death by disease for children in America. 20 % of children with cancer in the U.S. will not survive it. 

More than 85% pediatric cancer cases occur in developing countries that use less than 5% of world resources. The rate will exceed 90% in the next two decades, due to the increase of youth population in favor of developing countries. Survival rate is as low as 30% in these countries.

Childhood cancer in developing countries presents unique challenges and concerns compared to more developed nations. While advances in medical science have significantly improved the diagnosis and treatment of childhood cancer worldwide, there are still disparities in access to care and outcomes between developed and developing countries. Here are some key factors to consider

1. Limited Access to Healthcare: Many developing countries lack the healthcare infrastructure, medical facilities, and skilled healthcare professionals needed to diagnose and treat childhood cancer effectively. This can result in delayed diagnoses and limited access to life-saving treatments.

2. Late Diagnosis: Childhood cancer is often diagnosed at later stages in developing countries due to factors such as limited awareness, poor access to healthcare, and cultural beliefs. Late diagnosis can reduce the chances of successful treatment and increase mortality rates.

3. Lack of Specialized Pediatric Oncology Centers: Developing countries may have limited or no specialized pediatric oncology centers equipped with the necessary expertise and resources to provide comprehensive cancer care to children.

4. Financial Barriers: The cost of cancer treatment can be a significant barrier for families in developing countries, where healthcare expenses are often paid out of pocket. Many families are unable to afford the high costs of cancer treatment, including chemotherapy, radiation therapy, and surgery.

5. Stigma and Cultural Beliefs: Cultural beliefs and misconceptions about cancer can lead to stigma and discrimination against children with cancer and their families. This can result in delayed treatment and isolation.

6. Limited Access to Medications: Access to essential cancer medications and chemotherapy drugs may be limited in developing countries due to cost, availability, and distribution challenges.

7. Malnutrition and Coexisting Infections: Malnutrition and coexisting infections can complicate cancer treatment and increase the risk of complications, especially in resource-constrained settings.

8. Limited Research and Data: There may be limited research and data on childhood cancer in many developing countries, making it difficult to understand the specific challenges and design targeted interventions.

Efforts to address childhood cancer in developing countries involve a multi-faceted approach, including.

Capacity Building: Building and strengthening the healthcare infrastructure and workforce to provide specialized pediatric oncology care.

Education and Awareness: Raising awareness about childhood cancer, its signs, and the importance of early diagnosis and treatment within communities.

Financial Support: Providing financial assistance and subsidies to families to ensure that they can afford cancer treatment for their children. 

International collaboration: Collaborating with international organizations and developed countries to share expertise, resources, and knowledge in the field of pediatric oncology.

Research: Conducting research to understand the unique challenges faced by children with cancer in developing countries and developing strategies to address them. 

Addressing childhood cancer in developing countries is a complex and ongoing effort that requires the involvement of governments, healthcare organizations, NGOs, and the global community to ensure that all children have access to timely and effective cancer care.

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.

Warriors and Survivors - 124

 Children Cancer Stories by Rukh Yusuf - Blog # 124

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 

Shazia was diagnosed with acute Embryonal RMS(Embryonal Rhabdomyosarcoma) at the age of three. Her mother shares her story.  

“Shazia was previously good and well with no medical problems until developing a limp just days before her second birthday. Within days, she was unable to bear any weight. It was unclear what the problem was because her blood tests were clear, and she had no other symptoms. Eventually, she had an MRI scan which discovered lesions through all the major bones in her body.”

The family was told that she had cancer – type yet to be determined.

The diagnosis was not straightforward, and leukemia was originally ruled out because her blood and first bone marrow tests were clear. On 10 February 2021, a biopsy of one of the lesions in her leg led to a diagnosis of Embryonal RMS and later her treatment began.

Embryonal Rhabdomyosarcoma (ERMS) is a type of Rhabdomyosarcoma (RMS). RMS is a fast-growing tumor that typically effects children under 6 years of age. ERMS usually occurs in the head and neck, bladder, vagina, or in around prostate and testicles. 

The prognosis for ERMS depends on the tumor’s size, location, staging and child’s age. In general, ERMS has a more favorable outcome. Two subtypes of ERMS, botryoid and spindle cell rhabdomyosarcomas, have a better prognosis than the more common conventional form. 

Treatments for ERMS often include chemotherapy, radiation therapy, and surgery. Most cases of ERMS respond well to intensive treatment. A smaller percentage of low-risk children can do very well with markedly reduced therapy. The overall survival rate for children with RMS is about 70%. For those with intermediate risk, the five-year survival rate goes down to about 50 to 70 %. 

Back to Shazia and her ERMS treatment,  Shazia was unable to walk for some time due to complications of treatment - her symptoms were not typical. She was treated for six months at Children's Hospital and has been in remission for a few months.

She is fit, well and strong, able to do park runs and play. She is happy and looks like not afraid to hospital and follow ups. She has started school and she try to write her experience at hospital. 

She's incredible in fighting the disease at such a young age.  

Let’s do special prayers for Shazia’s smooth and successful treatment. Many sincere prayers for her successful treatment. Aameen.

Please join me in praying for health and recovery of Shazia. May she recover soon. 

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.

Note: Names have been changed to protect identity