Children Cancer Stories by Rukh Yusuf - Blog # 223
I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen.
I’ve seen her smile more than I expected.
Momina is eight. From Lahore.
She has beta-thalassemia major—the kind where the body can’t make enough functional hemoglobin, and life becomes a balance between blood transfusions and iron overload. Her parents bring her to the outpatient unit twice a month. I see them in the waiting area sometimes—quiet, focused. Her father mostly listens. Her mother mostly holds everything together.
You learn, over time, not to look at thalassemia only as a disease. You start seeing it as a long story—told in lab reports, ferritin levels, side effect charts, and yes, in the faces of children like Momina. She looks small for her age, but her eyes are curious, watching everything. During a recent visit, she asked me if medicine can make blood. Not a transfusion. “Medicine that tells my body to do it,” she said.
There’s no easy answer for that. And I didn’t give one. I just said, “We’re working on it.”
For Momina, treatment is a full-time commitment. Her medications include iron chelators to reduce iron accumulation caused by frequent transfusions. Without chelation, iron builds up in her liver, heart, and other organs—something that can quietly turn dangerous. We’ve shifted her from deferoxamine to an oral agent because the nightly injections were becoming too much.
We try to anticipate problems before they happen—nausea from chelation, vitamin D deficiency, potential cardiac strain. Each month, her bloodwork tells us a little more about how she's handling the therapy. Not just physically, but emotionally too. Some days, she refuses to eat after a transfusion. Other times, she chatters on about school like nothing is wrong. That unpredictability is part of the disease.
Her family doesn’t use big words like “cure.” They talk about “next steps,” “this month’s numbers,” “how long this medicine will last.” They’ve stopped asking for guarantees, but they haven’t stopped showing up. That, in itself, is something I’ve come to admire.
There’s talk in the medical community about gene therapy for beta-thalassemia, and yes, it’s promising. But for under developed countries it still feels distant—too costly, too experimental, too far from Lahore. So, for now, we work within the limits of what’s available. Medications. Monitoring. Blood donations. Hope that’s measured, not idealized.
Lately, her response to transfusions has slowed. Her pre-transfusion hemoglobin dips lower than before. Her spleen is slightly enlarged. These changes are small, but they add up. This is what we call a “slow decline.” Not alarming, but unmistakable.
There’s no dramatic shift to mark the moment when a child starts to worsen. It’s a gradual series of small adjustments—lowering activity levels, adding a new supplement, shifting a medication dose. These are the ways we try to hold her steady, even as her condition quietly shifts beneath us.
Not a Story of Triumph—Just a Story Still Going
This isn’t a story of beating thalassemia. Not yet.
It’s a story of living with it—of managing symptoms, watching numbers, adjusting medications, and holding onto routines. It’s about an eight-year-old girl who still jokes with the phlebotomist, and a family that asks thoughtful, specific questions, and a pharmacist who follows every small change in her case like it matters.
Because it does.
Prayers for Momina and all the sick children and their families who have to face this pain of cancer. May Allah make it easy for them. Aameen