Friday, September 3, 2021

Warriors and Survivors

 

Children Cancer Stories by Rukh Yusuf - Blog # 21


I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen.

 

“They say a person needs just three things to be truly happy in this world: someone to love, something to do, and something to hope for.”
― 
Tom Bodett

The ribbon is a symbol of awareness, hope and support.  It was originally used in the early mid-1900s in a United States military marching song.  The song “Tie a Yellow Ribbon”, inspired the wife of a hostage held in Iran from 1979-1981 to use the yellow ribbon to show support for hostages and to remind others of their service to their country.  Later, during the Gulf War the symbol evolved into a reminder of all men and women serving the country abroad.

After a decade, AIDS activists turned the yellow ribbon red.  From then on every charitable health cause had one.  It became so popular that the New York Times called 1992 “The Year of the Ribbon.” 

Since then, ribbons have been used for many awareness campaigns. The meaning behind the ribbon depends on its color.   Many causes often share each ribbon color e.g. Red for AIDS, Pearl or White for Lung cancer, Pink for breast cancer etc.


Gold is a precious material and since children are our most precious treasures, it is a perfect image highlighting the importance of beating childhood cancer. The gold ribbon represents all types of cancer affecting children and adolescents: it is the universal symbol to create awareness about childhood cancer and mobilize increased attention.

Most people know that the pink ribbon symbolizes breast cancer but unfortunately there isn’t much awareness about the gold ribbon. This is unfortunate and shows much should be done to bring awareness about childhood cancer.

Its start of another September and This month is celebrated as pediatric cancer awareness month that symbolizes golden ribbon.

By raising awareness during September- Childhood Cancer awareness month, we can really make a difference and help to create a brighter future for children and adolescents with cancer.

“The key to life is accepting challenges. Once someone stops doing this, he's dead.”
― 
Bette Davis

For every accomplishment there are challenges, efforts and struggle in the presence of resources in the right direction. The rule applies everywhere and health sector is not an exception. Treatment outcomes of any disease depends on multiple factors from trained and qualified human resources to equipments, medications, buildings and much more.

Pediatric oncology treatment globally is associated with lot of challenges to handle including Late diagnosis, Cultural or socioeconomic barriers, Lack of information at primary care level,

Poor referral to pediatric oncology units, Deficient healthcare system, Lack of recognition of existing centers, Lack of pediatric oncology units, Lack of multidisciplinary approach and Lack of infrastructure. There are many more in a country like Pakistan including treatment Abandonment, fragmented care, Cultural barriers, Stigma associated with cancer and most important Financial limitations.


“A challenge only becomes an obstacle when you bow to it.” ― Ray A. Davis

 

I shall focus on challenges one by one, shortage of pediatric oncology units have been discussed already. One more challenge faced by these poor souls is frequent visits and long duration of treatment. In Pakistan eighty percent pediatric cancer patients belong to peripheries and even small percentage comes from neighbor country. Its cumbersome to travel this much with sick children. They need to stay nearby in properly facilitated place to avoid frequent visits. There is a dire need of properly managed guest houses or Inn with every pediatric oncology unit. Healthcare staff and philanthropists accepted this challenge too and managed one inside hospital but that is still insufficient for large number of patients being treated. There is need to be built more guest houses like this for better management of these patients.

Shall take up this topic with more detail in next blog.

“Being challenged in life is inevitable, being defeated is optional.” ― Roger Crawford

Refrences:

https://gboncology.com/blog/origin-of-the-ribbon/

https://siope.eu/curemoreandcurebetter

https://www.acco.org/gold-ribbon-awareness/

 

 

 

 

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Blog Post # 03 by Rukh Yusuf