Friday, October 22, 2021

Warriors and Survivors -28

Children Cancer Stories by Rukh Yusuf - Blog # 28


I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen.

 

It’s heart wrenching when some one’s only son is diagnosed with a horrible disease like cancer, and at such a tender age. Wahaj is only four and half years old and the poor soul is having cancer. He is the only son of his parents and has two sisters. He belongs to middle class family of Sialkot. Today’s story is mostly described by his mother as Wahaj is too young to express his feelings.

 

Wahaj started having constipation with abdominal distention and fever few months back. Upon check up and subsequent investigations, Wahaj was diagnosed with Burkitts Lymphoma, a very aggressive cancer, at the age of four in April 2021.

 

Her mother says, at that point in time, within seconds, our life shattered and fell apart.  No one can ever prepare you for the pain and total devastation when you are told: “I’m really sorry but your son has cancer”.

She said, ‘I fell to the floor screaming whilst my husband stood listening to our consultant in total shock with tears’. Since then our cancer journey started as we were admitted to oncology Ward at Children’s hospital, for the proper diagnosis and start of his very intensive chemotherapy. ‘The emotions we pass through are so very hard to describe and we shed constant tears’.

In the ward,  we found our strength with support from the other inspirational families and their brave children, and also the incredible staff helping us.  She said, ‘we could never have prepared ourselves for how ill our precious little boy was to become before getting better. The temperatures, the hair loss, loss of control of his bladder and bowels, his facial palsy, the sickness, infections and so much more. The mucositis he suffered with was horrific, he had ulcers all over his mouth and down throughout his body. He couldn’t talk, couldn’t eat, couldn’t drink, couldn’t open his mouth, couldn’t move and he must have been in terrible pain and felt so ill. It was heart-breaking, and we were helpless. He was hooked up to so many things to help him through alongside his chemotherapy, anti-sickness, high dose IV morphine, high dose IV paracetamol, IV antibiotics.

 

Wahaj’s two chemotherapy cycles completed, he was sent home and asked to appear before start of next cycle. He went through further chemotherapy cycles with similar experience, and no doubt it was not easy not only for Wahaj but for all of them.

His mother said, ‘I don’t think Wahaj fully understands what he has been through as he is still so young and was diagnosed at the age of three years. We have a box of things dedicated to his journey and one day when he is old enough, we will show Wahaj and tell him his story. Every day we tell him how brave he is, he is our superhero and that he is capable of achieving anything in life.

Wahaj is so loving, never stops smiling and is so full of fun and energy. At such an early age, he has learned so many important lessons about life.

His new chemo cycle has started and now he enjoys going to hospital to see everyone who made him better and his ward friends. The hospital is a second home and his safe place but still sometimes when he is in pain, he asks to go home to meet his father.

While the world continues to battle the pandemic, Wahaj and family are feeling very fortunate that they are all going to home and staying safe after completing another cycle of chemotherapy. His treatment continues and his mother is hopeful and says, “We are looking forward to the brighter times ahead of us and creating lot more memories with our son, our very own real life superhero”.

 

We pray for the ease and complete recovery of Wahaj. Aameen

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