Friday, May 31, 2024

Warriors and Survivors -163

Children Cancer Stories by Rukh Yusuf - Blog # 163


I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen.


Childhood is a time for exploration, learning, and joy. However, for some children, it can also be a time of unexpected challenges. One such challenge is T-cell Acute Lymphoblastic Leukemia (T-cell ALL), a type of cancer that affects white blood cells. This post tells the story of a 10-year-old Noah diagnosed with T-cell ALL.

T-cell ALL is a cancer of the lymphoid line of blood cells, characterized by the overproduction of immature white blood cells called lymphoblasts. These cells crowd out normal cells, leading to a range of symptoms. The disease is aggressive but treatable, especially with early diagnosis and proper care.

For our young patient Noah, the journey began with subtle signs. He experienced frequent fevers, fatigue, and unexplained bruises. His parents, initially attributing these symptoms to common childhood illnesses, grew concerned as the symptoms persisted. A visit to the local clinic led to a referral to a specialist, where blood tests and a bone marrow biopsy confirmed the diagnosis: T-cell ALL.

In a lower middle-income country, accessing quality healthcare can be challenging. Limited resources, long travel distances to specialized hospitals, and financial constraints often hinder timely and effective treatment. Noah was fortunate to have access to a cancer treatment center supported by local government programs. These programs are crucial in providing the necessary chemotherapy and supportive care.

Treatment for T-cell ALL typically involves several phases. Induction therapy is the initial phase that aims to bring about remission, where leukemia cells are no longer detectable. It involves intensive chemotherapy, which can last several weeks. After remission is achieved, consolidation therapy aims to eliminate any remaining leukemia cells, using a combination of drugs. Maintenance therapy is the long-term treatment phase that helps to prevent relapse, often continuing for two to three years.

For Noah, the treatment journey was long and demanding. The side effects of chemotherapy, such as hair loss, nausea, and susceptibility to infections, were tough to endure. However, with the support of his family and medical team, he navigated these challenges with remarkable courage.

In our culture, the extended family and community play a significant role in a child's treatment journey. Noah’s parents, along with relatives and neighbors, provided emotional and practical support. From helping with travel to the hospital to providing home-cooked meals, they helped a lot.

The psychological impact of a cancer diagnosis on a child is profound. Access to mental health services is often limited, but innovative solutions are emerging. Non-governmental organizations and local charities often step in to fill the gap, providing counseling services, educational support, and recreational activities to help children cope.

The road to recovery from T-cell ALL is long and requires ongoing monitoring and care. While Noah has achieved remission, regular follow-ups are essential to detect any signs of relapse.

Noah’s story is example of resilience, hope, and community support. Despite the challenges, access to quality medical care, the unwavering support of family and community, and the contributions of supporting people make a significant difference. As we continue to advocate for improved healthcare access globally, every small step taken brings us closer to a world where no child has to fight cancer alone.

Prayers for Noah’s complete recovery and healthy life. May he recover quickly, and his disease never comes back.

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.

Friday, May 24, 2024

Warriors and Survivors -162

 Children Cancer Stories by Rukh Yusuf - Blog # 162

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 


When a child is diagnosed with a serious illness, the entire family's world changes. This is the story of Ali, a six-year-old boy, and the journey his family is navigating after his diagnosis of Acute Myeloid Leukemia (AML).

It all started when Ali began feeling unusually tired and started getting frequent fevers. Initially, his parents thought it was just a common virus. But when Ali’s energy levels didn’t bounce back and he developed unusual bruising, they took him to the doctor. After a series of tests, the diagnosis came: Acute Myeloid Leukemia. Hearing the word "leukemia" felt like the ground had been pulled out from under them. Their lively and loving boy was suddenly thrust into a world of hospitals, needles, and treatments.

Before his illness, Ali loved playing outside with his friends and playing games. Now, his days are often spent in a hospital bed, undergoing treatments that leave him feeling exhausted and nauseated. Ali misses his friends and school, and the isolation makes him sad. He doesn’t understand why he can’t just play like he used to.

For parents, watching their energetic child become frail and sick is heart-wrenching. Mother often finds herself crying in private, trying to be strong in front of Ali and his younger sister. Father, who used to be the family’s rock, is now struggling with his own fears and anxieties. The couple tries to support each other, but the emotional toll is heavy.

The financial impact of Ali’s illness is profound. Even with public hospital, the out-of-pocket expenses for treatments, medications, and hospital visits add up quickly. Father has had to take unpaid leave from his job to help care for Ali, which further strains their finances. They worry about paying bills and maintaining their home, adding another layer of stress to an already overwhelming situation.

Ali’s four-year-old sister, doesn’t fully understand what is happening but senses the tension and sadness. She misses the attention she used to get from her parents and feels confused and scared. 

Ali’s weakened immune system means they have to be extra cautious about germs, leading to more frequent cleaning and avoiding crowded places. These changes add to the workload and stress for parents, who are already stretched thin.

Through all the difficulties, there are moments of hope and joy. When Ali has a good day, free from pain and fatigue, the whole family relax. They treasure these moments, finding strength in Ali’s resilience and bravery. Parents are inspired by their son’s ability to smile and find joy despite everything he’s going through.

Ali’s journey with AML is far from over, but his family is determined to face it together. They have learned to appreciate the small victories and support each other through the tough times. Friends and family have rallied around them, offering help and love, which has been a great source of comfort.

In the midst of their struggle, Ali’s family has discovered a deep well of strength and love. They are united in their determination to support Ali and each other, finding hope in the darkest of times. While AML has brought unimaginable challenges, it has also brought them closer together, showing them the true meaning of family and resilience. 

Prayers for Ali’s complete recovery and healthy life. May he recover quickly, and his disease never comes back. 

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.


Friday, May 17, 2024

Warriors and Survivors - 161

Children Cancer Stories by Rukh Yusuf - Blog # 161


I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 


Let’s meet 3-Year-Old Mehrab who is battling Burkitt Lymphoma in this tender age. 

Mehrab is a bright and curious 3-year-old boy who loves playing with cars and running around with his friends. But with this cheerful smile and energy, Mehrab is fighting a tough battle against Burkitt lymphoma, a rare and aggressive form of childhood cancer.

Mehrab's parents first noticed something was wrong when he complained of persistent abdominal pain and fatigue. After several visits to the doctor and numerous tests, the devastating diagnosis was made: Burkitt lymphoma. The news shook the family, but they had to save their lovely child. 

Burkitt lymphoma is a type of non-Hodgkin lymphoma that affects the immune system. It is one of the fastest-growing cancers, with a doubling time of just 24-48 hours. This means that the cancer can progress rapidly, making timely treatment crucial.

Mehrab began his treatment journey with a series of chemotherapy sessions, hospital visits, and medical procedures. The treatment has taken a toll on his tiny body, causing hair loss, weight loss, and fatigue. Despite the challenges, Mehrab family remains brave and resilient. 

Cancer affects not only the child but also the entire family. Mehrab's parents have had to juggle work, childcare, and medical appointments, all while trying to maintain a sense of normalcy for their son. The emotional toll of watching their child suffer is immense, but they remain steadfast in their support for Mehrab.

Mehrab's story is a reminder of the importance of early detection, medical research, and support for families affected by childhood cancer. His bravery and resilience have inspired a community of loved ones, medical professionals, and strangers who have rallied around him.

If you're reading this, please take a moment to send a thought or prayer for Mehrab and his family. Your support means the world to them.

Prayers for Mehrab’s complete recovery and healthy life. May he recover quickly and his disease never comes back. 

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.


Friday, May 10, 2024

Warriors and Survivors - 160

Children Cancer Stories by Rukh Yusuf - Blog # 160


I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 


My heart shatters into a million pieces whenever I encounter a teenager battling cancer. The weight of the diagnosis is heavy for anyone to bear, but for adolescents like Azhar, it feels particularly cruel. This is the age when dreams are budding, when their world is full of possibilities waiting to unfold. To face such an illness at this tender age is a nightmare. 

Azhar and his family had a shock when, at just 14 years old, he and his family received the news of his blood cancer diagnosis. No one could believe about this harsh reality that was there. But Azhar had a determination to fight, not just for survival, but for the life he is dreaming.

Cancer treatment journey is usually a rollercoaster of emotions, nothing different for Azhar and his family. From the countless hospital visits to the many rounds of treatment, every step is full of uncertainty. So far, Azhar is determined to fight, but sometimes he seems quiet and thoughtful, he does not share his fears but after all he is just a teen.

For Azhar, the support of his family is his rock, a source of strength and comfort in this time of adversity. His parents, siblings, and extended family rallied around him; their love is a constant reminder that he is not alone in this fight. Their presence transforms the hospital room into warmth and affection, easing Azhar's fears and filling him with courage.

But it isn't just family that is supporting Azhar through his dark days – it was also the support of his friends, and staff at hospital. He has made some friends in hospital too.  

As Azhar's journey continues, he carries with him the memories of those who are with him – the loved ones who held his hand through the darkest nights, the friends who are lifting his spirits with their laughter, and the healthcare heroes who are giving him hope when all seems lost.

Though the road ahead may be long and uncertain, Azhar faces it with courage and resilience. Though 14 years, he is a teen with fear of uncertainty, but he and his parents are fighting may be because they do not have any other option. He and his family need prayers, support and affection. As enduring power of support, love, friendship, and community overcomes life challenges. It is our shared humanity that binds us together, giving us the strength to face whatever may come our way.


Prayers for Azhar’s complete recovery and healthy life. May he recovers quickly and his disease never comes back. 

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.


Friday, May 3, 2024

Warriors and Survivors - 159

Children Cancer Stories by Rukh Yusuf - Blog # 159

 

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 


Hodgkin lymphoma, also known as Hodgkin's disease, is a type of lymphoma, a cancer of the lymphatic system. Hodgkin lymphoma is a group of blood cancers that affects our lymphatic system. Hodgkin lymphomas are relatively rare but they’re the most common cancers in young adults and there are considerable recurrence chances as well.  

Ali Raza was only seven years old when he was diagnosed with Hodgkin’s Lymphoma in August 2023. 

Before Ali’s diagnosis, his parents noticed he had a blister for some time with pain that caused them concern. Not long after, Family was told that Ali had Hodgkin’s lymphoma and he needs treatment urgently as his disease was progressive. 

Ali’s treatment immediately initiated in September 2023 and to this date Ali had been through six cycles of chemotherapy. This whole duration was a roller costar, Ali had to get admitted few times in emergency department and he spent few days in ICU as well. 

Ali Raza and his parents are still fighting for his treatment and recovery. He is half way through his treatment and we pray for his smooth treatment and recovery. 

He is a hero to his parents for his resilience in this fight. Despite how difficult it is, Ali never gave up. Their hope is for Ali to be able to live life: go to school, have a job, have a family. All the normal things others may take for granted.

Prayers for Ali Raza’s complete recovery and healthy life. May his disease never come back. 

Lots of prayers for all sick children to recover quickly and never experience their illnesses again. May they lead happy and healthy lives once more. Aameen.


Blog Post # 03 by Rukh Yusuf