Children Cancer Stories by Rukh Yusuf - Blog # 230
I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have been working in the Pediatric Oncology unit of a public hospital for several years. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen.
A Small Child-Big Diagnosis: Hammad’s Story
Hammad is only one and a half years old. At this age, most parents are caught up in watching their child take unsteady steps, speak their first clear words, and begin to show tiny glimpses of their personality. But for Hammad’s parents, life has taken a very different turn. Instead of simply enjoying these milestones, they are weighed down by the words of a diagnosis they had never even heard before: beta thalassemia.
When the doctor explained it, they could barely follow. The name itself felt heavy and foreign. They had taken Hammad to the clinic after noticing that he seemed unusually pale, often tired, and not as playful as other children his age. They thought maybe he was low in vitamins, maybe a simple syrup or tonic would help. But after blood tests, they were told their son had a serious blood disorder, something that would not go away with a short treatment.
For a moment, both parents were speechless. They did not know what to ask, because they did not even understand what it meant.
Coming to Terms with the Unknown
For families who have never heard of thalassemia, the diagnosis is not just frightening, it is confusing. Hammad’s parents had questions piling up in their minds: Will he recover? Will he always be sick? What does this mean for his future? They did not have the words to ask, and even when the doctor explained, it was difficult to absorb.
Beta thalassemia is a genetic blood disorder where the body cannot make enough healthy red blood cells. Without treatment, it causes severe anemia. The only way to manage it is through regular blood transfusions and ongoing medical care. For a small child, that means hospital visits will become a part of life.
When Hammad’s parents understood this, a silence settled over their home. They looked at their little boy, still smiling at them, too young to know anything about illness. And they wondered how they would carry him through this unknown road.
The First Steps in Care
The days after the diagnosis felt unreal. Relatives and friends asked about Hammad’s health, and his parents found themselves hesitating. How do you explain something that you are still struggling to understand yourself?
They began reading, searching, and asking doctors for more information. They learned that children with beta thalassemia often need transfusions every few weeks. They learned about iron buildup in the body, and the medicines that help reduce it. They learned that while there is no easy cure, medical advances and proper care can give these children a chance at a better life.
But behind every fact they read, there was a quiet ache. No parent imagines their toddler spending childhood in and out of hospitals.
The Emotional Weight
For Hammad’s parents, the hardest part is not just the treatment it is the uncertainty. They wonder how they will explain this to him when he grows older. They think about the financial and emotional burden of constant medical care. They worry about whether they will be strong enough to manage it all. Whether Hammad will be strong enough to bear this all
At the same time, they feel the quiet isolation that often comes with rare diagnoses. Few people around them truly understand what they are facing. And yet, their love for Hammad keeps them moving, one day at a time.
Why Awareness Matters
Hammad’s story is not just about one child. Every year, many families in South Asia and around the world discover that their child has thalassemia. Often, like Hammad’s parents, they hear the name for the very first time only after diagnosis.
What makes this especially important is that thalassemia is preventable. Since it is a genetic condition, couples can undergo simple blood tests before marriage or pregnancy to know if they carry the trait. If both parents are carriers, there is a risk of having a child with thalassemia.
Awareness can change futures. If more families knew about screening, many could be spared the shock and pain of an unexpected diagnosis. Communities could talk more openly about genetic conditions instead of keeping silent out of fear or stigma.
Looking Ahead
For now, Hammad is too young to know the challenges ahead. He still laughs when his father tosses him in the air, still clings to his mother when he feels sleepy, still lives in the innocence of babyhood. His parents, though, are beginning a journey they never imagined.
They are learning to balance hospital visits with normal family life, to manage their fears while giving Hammad the love and comfort every child deserves. And perhaps most importantly, they are learning that they are not alone. Other families have walked this road, support groups exist, and medical care though demanding, is possible.
A Gentle Reminder
Hammad’s story is a reminder for all of us. Illness does not only affect bodies; it touches families, hopes, and futures. Beta thalassemia is not just a medical condition it is a lifelong reality that parents and children must navigate together.
By talking about it, by sharing stories like Hammad’s, we can create understanding. We can encourage more people to get tested, more communities to support affected families, and more compassion for the quiet struggles that often go unseen.
Hammad’s parents still do not have all the answers. They are still speechless at times, still afraid. But they hold on to one truth: their little boy deserves every chance at life. And for him, they will face whatever comes next.
Prayers for Hammad and all the sick children and their families who have to face this pain of cancer. May Allah make it easy for them. Aameen