Warriors and Survivors - 240

Children Cancer Stories by Rukh Yusuf - Blog # 240

I am Rukh Yusuf, Clinical Pharmacist, also specialized in Total Parenteral Nutrition and Bone Marrow Transplant. I have worked in the Pediatric Oncology unit of a public hospital. The mission of this blog is to bring to you the real-life stories of child patients suffering from cancer. Cancer is still a difficult disease to handle and treat. However, when it strikes the children, some so young that they cannot even speak, their agony is beyond expression and words. Let us pray especially for children suffering from cancer for early and complete remission. May Allah shower His Merciful Blessings upon them. Aameen. 

Anam’s Story: A Small Girl Carrying a Heavy Illness

Anam is only five, but she has already learned more about hospitals, needles, and waiting rooms than most adults ever will. She was diagnosed with thalassemia major when she was four, a diagnosis her parents had never heard before, yet it changed the rhythm of their home overnight.

Thalassemia major is not just a condition that limits hemoglobin. It reshapes childhood. It replaces school mornings with hospital visits, replaces playtime with transfusion schedules, and turns a young girl’s life into a cycle of blood bags, iron chelation medicines, and constant monitoring. For Anam, this has become a normal routine, even though it is anything but normal.

Her parents describe the first months after diagnosis as a blur. They were told she would need lifetime blood transfusions every few weeks. They were told about iron overload, medicines to control it, strict monitoring, risks of infections, and the emotional toll of constant hospital care. They tried to absorb it all while watching their child sit quietly, holding her father’s hand, not understanding why the world around her had suddenly changed.

In many low - and middle-income countries, thalassemia is common due to high carrier rates, sometimes affecting 5% to 10% of the population. In some regions of South Asia, the Middle East, and parts of Africa, thousands of children like Anam rely on regular blood transfusions simply to stay alive. In developed world, carrier screening programs, better diagnostics, and more consistent health systems have lowered the number of new severe cases. Even then, children still face the long-term burden of treatment, but they often have more stable access to blood banks, chelation therapy, and follow up care. The contrast is stark, and families in developing regions feel that gap deeply.

For Anam’s parents, the biggest struggle has been securing regular transfusions on time. Each visit comes with the same fears: Will we find a matching unit today? Will the hospital have enough blood stock? Will the medicines be available this month? They have learned that caring for a child with thalassemia requires not just resilience but also a kind of quiet courage and patience, one that must be renewed with every hospital trip.

Some weeks, her father takes time off work and loses part of his day’s earnings. Other times, her mother makes long phone calls to blood banks and local volunteers the night before a scheduled transfusion, trying to arrange a donor just in case the hospital supply runs low. There were times when they waited for hours in overcrowded clinics, Anam resting her head on her mother’s lap, tired not only from low hemoglobin but from the long journey itself.

Chelation therapy, essential to control iron overload adds another layer of challenge. These medications can be expensive, require long term use, and sometimes cause side effects that are difficult for a small child to tolerate. Anam’s parents juggle these decisions carefully, often asking other families for advice and adjusting doses under medical guidance. Small details, finding pharmacies that stock the medication, keeping her on schedule, convincing her to take each dose, become part of their daily life.

Still, they say Anam rarely complains. She winces during IV insertions, grips her mother’s kurta tightly, and sometimes cries from the discomfort, but once the transfusion begins, she settles. She listens to stories, watches cartoons on her father’s phone, or simply sleeps. A few hours later, her cheeks look a little brighter. Her parents always notice that small change, it is the sign they hold onto.

Across many countries, organizations and public sector programs try to support children like Anam. Regional thalassemia foundations help coordinate donors and provide counseling. Some governments supply free or subsidized chelation therapy. Public hospitals set up dedicated transfusion centers, and local nonprofits organize blood drives. These efforts do not erase the illness, but they ease parts of the journey. Anam’s family has benefited from volunteer led blood donation groups more than once, and they say those moments feel like a gift from strangers.

But despite all support, the emotional weight remains. Childhood illness does not only affect the patient it reshapes entire families. Anam’s parents plan their weeks around transfusions. They track her lab values, budget for her hospital visit, and try to maintain a sense of normalcy at home. They do everything quietly, without dramatizing their struggles, because they want Anam to feel like she is still just a little girl.

And she is. She loves coloring books, her pink slippers, and the swing in the small park near their house. On days when her hemoglobin is higher, she plays a little longer and laughs more freely. Her parents say those are the moments that keep them moving forward.

Anam’s life is not defined by thalassemia, but by the strength she shows while living with it. And her story is one of thousands of children whose childhoods are shaped by a condition they did nothing to deserve, yet they face it with a quiet patience and bravery that humbles everyone around them.

Anam’s life is shaped by thalassemia, but it is not limited by it. What stands out most is not the illness itself, but the way she carries it without bitterness, without asking why, simply moving through each hospital visit with the kind of resilience children rarely get credit for. Her parents often say they learn strength from her. On good days, when she runs a little faster or laughs a little louder, they feel as if the whole world has eased for a moment. Those small, ordinary moments are what keep them going. They hold onto them quietly, hoping for more days when Anam can just be a child, free from hospitals, needles, and the weight she never chose to carry.

Prayers for Anam and all the sick children and their families who have to face this pain of cancer. May Allah make it easy for them. Aameen